If you would like access to data or samples from the Department Of Twin Research & Genetic Epidemiology or are interested in proposing a collaboration with us, please first follow the link DTR Policy Document for data access which will give you the necessary background information.
You will then need to complete a “Data Access Proposal Form” (links below) and email the completed form to the Data Access Manager Victoria Vazquez for consideration by the Department of Twin Research Executive Committee.
The proposal should specify the data and/or samples required clearly. Individual variables need to be listed with an appropriate justification describing the aims/hypothesis of the project for which the data is requested.
No attempt should be made to link or combine the data provided under this agreement to other information or archived data available for the data sets provided, even if access to that data has been formally granted to you, or it is freely available without restriction, unless specific permission to do so has been received from the TwinsUK TREC.
Please be aware that our governance does not allow extensive, untargeted AI data requests and therefore we will not be able to support these applications
Important: Please ensure that any data request to the DTR includes all phenotypes that you will require for your research as well as potential confounders for the analysis. Any subsequent request for additional data after the initial application has been processed will require you to submit a new Data Access Proposal Form.
For data from Berry et al, 2020 ( https://www.nature.com/articles/s41591-020-0934-0) and Ascinar et al, 2021 ( https://pubmed.ncbi.nlm.nih.gov/33432175/) (PREDICT studies), we suggest that you contact Victoria Vazquez with a brief aim of the project (1-2 lines) and summary of the data required (high level) prior to completing the full TREC application. This is to assess if the data requested is available in a suitable linked format to address the hypothesis prior to completion of a full proposal.
Please note that there may be costs associated for your request to be fulfilled. See this page.
Please note that all publications arising from the use of TwinsUK data must include the following acknowledgements:
TwinsUK is funded by the Wellcome Trust, Medical Research Council, Versus Arthritis, European Union Horizon 2020, Chronic Disease Research Foundation (CDRF), Zoe Ltd, the National Institute for Health and Care Research (NIHR) Clinical Research Network (CRN) and Biomedical Research Centre based at Guy’s and St Thomas’ NHS Foundation Trust in partnership with King’s College London