If you would like to collaborate and access data and/or samples from the Department of Twin Research & Genetic Epidemiology, please follow the next steps:
- Read our DTR Policy Document for data access for necessary background information.
- Complete a “Data Access Proposal Form” for consideration by the TwinsUK Research Executive Committee.
- Specify the data and/or samples required clearly. Individual variables need to be listed with an appropriate justification describing the aims/hypothesis of your project
- Include all phenotypes and potential confounders that you will require for your research and analysis. Subsequent requests for additional data will require you to submit a new Data Access Application
Before submission, please note that:
- Our governance does not allow extensive, untargeted AI data requests and therefore we will not be able to support these applications
- No attempt should ever be made to link or combine the data provided to other datasets even if the data has been formally granted to you or it is freely available.
- Data can only be used for the specific project you are submitting
- If you wish to use the data for a different project, you will need to request permission from the TwinsUK Research Access Committee.
- All data requests will incur a cost. See this page for more information.
Nutrition data (Predict Studies)
For access to our Predict studies data on:
- Berry et al, 2020 (https://www.nature.com/articles/s41591-020-0934-0)
- Ascinar et al, 2021 (https://pubmed.ncbi.nlm.nih.gov/33432175/) (PREDICT studies)
Please contact the Data and Access Collaboration Manager and include the following information:
- A brief aim of the project (1-2 lines)
- Summary of the data required (high level)
The committee will first assess if the data is available in a suitable linked format to address your hypothesis prior to completion of a full proposal.
All publications arising from the use of TwinsUK data must include the following acknowledgements:
TwinsUK is funded by the Wellcome Trust, Medical Research Council, Versus Arthritis, European Union Horizon 2020, Chronic Disease Research Foundation (CDRF), Zoe Ltd, the National Institute for Health and Care Research (NIHR) Clinical Research Network (CRN) and Biomedical Research Centre based at Guy’s and St Thomas’ NHS Foundation Trust in partnership with King’s College London