“It’s like an MOT for your body”: TwinsUK participants reflect on research and the importance of diversity

1st June 2026

Returning TwinsUK participants Barbara and Jackie have shared how taking part in the study has helped them better understand their own health while also contributing to wider medical research – particularly the need for greater ethnic diversity in research cohorts. 

During their recent visit to TwinsUK at King’s College London, the twins completed a range of assessments including full-body scans, blood pressure measurements, strength testing and memory exercises. 

Reflecting on their experience, Barbara said: “We didn’t know what to expect… but as time’s gone on you look at the bigger picture and the bigger picture is actually your health.” 

The sisters explained that participation has also made them think more deeply about the role of diverse representation in research. 

“If you look at twins of colour… is there a difference and will that make a difference in treatment?” Susan said. “Not everything suits everybody and there’s always that gap.” 

They added that having more ethnic minority participants involved in research could help ensure treatments and healthcare approaches are informed by evidence across different populations. 

Jackie also reflected on the personal health benefits of taking part over several years. 

“They said to me that my cholesterol was slightly high,” she said. “I’ve had cholesterol tests done before with doctors, but they’ve never said to me, ‘slightly high, let’s look at it.’” 

She explained that after the visit, she followed up with her GP and began making lifestyle changes that she may not otherwise have considered. 

Barbara described the experience as “like MOT on your body for free,” adding that the study encourages participants to think more proactively about their health and wellbeing. 

The twins also spoke positively about the cognitive tests included in the visit and how these encouraged them to actively practise memory skills in everyday life. 

“When I’m walking I try to remember a road,” Barbara explained. “Whereas I would never remember that before.” 

Barbara and Jackie said the experience has made them more aware of their health overall and encouraged positive changes in diet, wellbeing and daily habits. 

Their reflections highlight the importance of long-term participation in research studies such as TwinsUK, as well as the continued need for greater ethnic minority representation to help ensure research findings benefit everyone.